LONDON: An Indian-origin couple based in London have introduced a global allergy awareness pressure in memory of their nine-year-old daughter who died of a serious response to blackberries and dairy.
The Nainika Tikoo Memorial Trust (NTMT) for Allergy Care and Brain Research, named after the couple's daughter Nainika, has been arrange as a not-for-profit charitable consider to create awareness, advertise coaching and fortify research find a cure for hypersensitive reactions.
The consider will begin its paintings in the United Kingdom however plans to take it world wide, together with India.
"As part of our support to research we are keen on looking at empirical evidence to document incidents in various countries and compare the size and nature of the problem across borders. The current impression is that it is a First World western problem and allergies do not exist in India or the eastern world," said Lakshmi Kaul, who has worked tirelessly on putting in the consider since her daughter was best the second one documented case in the United Kingdom of anaphylaxis because of blackberry.
She recollects the fateful day in May as a typical Sunday when after a horse-riding lesson her daughter had satisfied her father - Vinod Tikoo - to shop for elements to make some blackberry pancakes.
Nainika used to be allergic to dairy and egg via her early formative years however at round four years of age, she had grown out of her egg allergy. However, the circle of relatives have been ignorant of any other chemical compounds or enzymes in different meals that she might be delicate or allergic to.
"Nainika was severely allergic to milk and dairy, which limited her options for food anyways so this request to have blackberries was a big welcome. They bought fresh flour (dairy free) and blackberries to make pancakes...but she took one bite of the pancake and felt a strong reaction coming through," recollects Kaul.
Despite her father administering immediate first aid, together with an epipen given for emergency use and calling in the emergency services and products, Nainika suffered serious anaphylaxis. After about six days on life fortify, the couple needed to after all make a decision to let her move.
"The doctor said it looked like it wasn't the blackberry on its own, but there was something to do with dairy. The pancakes were dairy-free, but we're not sure if the ingredients had been contaminated or something. We didn't have any dairy products at home. The exact cause is unknown and it has left us with a lot of questions," says Kaul.
The shock of no longer best Nainika's demise but additionally the numerous systemic in addition to research gaps has led the couple to devote their lives to the paintings of allergy awareness and research to forestall different oldsters and families from being in their state of affairs.
"We ran a fund-raising appeal on 'Just Giving' and managed to raise over 14,000 pounds. The focus right now is on building awareness and getting people to talk about allergies and become proactive in seeking cure/support for allergy sufferers," explains Kaul, who works in the workplace of Conservative birthday party MP Bob Blackman and is an lively campaigner for the Kashmiri Hindu group in the United Kingdom.
The new consider's awareness pressure has already gone world, with messages pouring in from many nations world wide, together with India, Jordan, Canada, Australia, the Czech Republic, the US and UK. It may be calling for necessary allergy trying out in young children very similar to vaccinations and selling life-saving coaching in faculties and different institutions.
The consider eventually plans to continue elevating good enough budget to pour into research projects and determine a 'Gold Standard in Allergy Safety'.
The Nainika Tikoo Memorial Trust (NTMT) for Allergy Care and Brain Research, named after the couple's daughter Nainika, has been arrange as a not-for-profit charitable consider to create awareness, advertise coaching and fortify research find a cure for hypersensitive reactions.
The consider will begin its paintings in the United Kingdom however plans to take it world wide, together with India.
"As part of our support to research we are keen on looking at empirical evidence to document incidents in various countries and compare the size and nature of the problem across borders. The current impression is that it is a First World western problem and allergies do not exist in India or the eastern world," said Lakshmi Kaul, who has worked tirelessly on putting in the consider since her daughter was best the second one documented case in the United Kingdom of anaphylaxis because of blackberry.
She recollects the fateful day in May as a typical Sunday when after a horse-riding lesson her daughter had satisfied her father - Vinod Tikoo - to shop for elements to make some blackberry pancakes.
Nainika used to be allergic to dairy and egg via her early formative years however at round four years of age, she had grown out of her egg allergy. However, the circle of relatives have been ignorant of any other chemical compounds or enzymes in different meals that she might be delicate or allergic to.
"Nainika was severely allergic to milk and dairy, which limited her options for food anyways so this request to have blackberries was a big welcome. They bought fresh flour (dairy free) and blackberries to make pancakes...but she took one bite of the pancake and felt a strong reaction coming through," recollects Kaul.
Despite her father administering immediate first aid, together with an epipen given for emergency use and calling in the emergency services and products, Nainika suffered serious anaphylaxis. After about six days on life fortify, the couple needed to after all make a decision to let her move.
"The doctor said it looked like it wasn't the blackberry on its own, but there was something to do with dairy. The pancakes were dairy-free, but we're not sure if the ingredients had been contaminated or something. We didn't have any dairy products at home. The exact cause is unknown and it has left us with a lot of questions," says Kaul.
The shock of no longer best Nainika's demise but additionally the numerous systemic in addition to research gaps has led the couple to devote their lives to the paintings of allergy awareness and research to forestall different oldsters and families from being in their state of affairs.
"We ran a fund-raising appeal on 'Just Giving' and managed to raise over 14,000 pounds. The focus right now is on building awareness and getting people to talk about allergies and become proactive in seeking cure/support for allergy sufferers," explains Kaul, who works in the workplace of Conservative birthday party MP Bob Blackman and is an lively campaigner for the Kashmiri Hindu group in the United Kingdom.
The new consider's awareness pressure has already gone world, with messages pouring in from many nations world wide, together with India, Jordan, Canada, Australia, the Czech Republic, the US and UK. It may be calling for necessary allergy trying out in young children very similar to vaccinations and selling life-saving coaching in faculties and different institutions.
The consider eventually plans to continue elevating good enough budget to pour into research projects and determine a 'Gold Standard in Allergy Safety'.
British-Indian couple launch allergy awareness drive
Reviewed by Kailash
on
October 22, 2017
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